I'm sad. Sad that I don't have Parkinson's. I know that sounds crazy. But what I've been through over the past year is crazy too. I'm dying. Slowly. Quickly. Who really cares anymore? The fact is I'm dying faster than most of the people reading this. I'm not even 40 yet. And I'm PISSED.
Two years ago I was diagnosed with Parkinson's Disease. I can go though all the ins and outs of the prognosis, but the baseline is I was given a diagnosis. PARKINSON'S. I started relating to Michael J. Fox like you wouldn't believe! He was my new best friend.... my hero. HE STILL IS. And as long as I'm alive I will continue to raise money for his cause.
I have ALS. With Severe Cervical Stenosis/Myelopatathy. I've been going through tests and I'm not happy. Not only do I have the ALS... but I have severe narrowing in about 9 spots in my spine compressing the nerves. My neuro doesn't think there's a neuro surgeon that will touch my spine. So... I'm dying. AND... I need to make decisions on surgery. I'm missing someone tonight. PERIOD. Decisions need to be made. I don't think I've EVER felt so alone in my life.