Wow. Setting this thing up wasn't easy. I'm soooo NOT computer savvy, but happy that I can start recording my life again. I used to keep a blog on MySpace years ago and I've missed it. It's always nice to go back and read about your life years later. A few important people over the last year convinced me that starting a new blog would probably help me deal with my life and my condition. I'm hoping that my blog helps other Young Onset Parkinson's peeps, and maybe give some insight into what living with this disease is like for those who are "NORMAL." I say normal, because over the last couple of years I've definitely felt ABNORMAL. I suppose many of my friends would say I've always been this way. Quirky, manic, funny, sad... I could go on and on. Getting a diagnosis like Parkinson's Disease changes who you are, the way you think, and the way you live your life. Over the last couple of years I pulled away from a lot of people that were important to me. I've slowly started letting people back in. Letting people see me the way I am now. I guess there comes a point when you accept life the way it is. I know for me it felt great to just say, "FUCK THIS, AND FUCK PARKINSON'S! I DO WHAT I WANT!!!" Parkinson's is a degenerative disease. I won't get better. I have good days and bad days. The good days are great! The bad days SUCK. But even on my bad days I have my faith... I trudge through. I get through it. I was ANGRY after my diagnosis. And I still have days when I want to punch my Parkinson's doctor in the face, but it's getting better. He's doesn't have to duck for cover when I'm around. But then... I'd probably miss him altogether anyway. After New Years I started feeling a sense of peace. Michael J. Fox once said that when he was diagnosed he told his therapist that he felt like he was always waiting for the other shoe to drop. She informed him that he should stop worrying, because that shoe hit the floor already. That's kind of how I feel about all of it now. I've lost a lot over the last couple of years. I've watched people walk out of my life because they couldn't deal, couldn't watch me go through this. And of course I've made some pretty bad decisions along the way and hurt people that really did love. How I dealt with things before is totally different than the way I deal with things NOW. The few years pre-diagnosis and POST diagnosis were awful. AWFUL! Those of you that stood by and have seen me through the darkest part of this disease... I thank you. It's always nice to have cheerleaders. =-)
My condition has changed... it's constantly changing. That last paragraph took WAY too long to type. I guess that's what's frustrating for me sometimes. It takes longer for me to shower, get dressed, TYPE, walk, move, and sometimes even speak. Stress affects my condition big time, and I try to walk away from it every chance I get! I used to RUN towards drama, even created a lot of it myself. These days I like things simple. Easy. I try to save the drama for the movies.
So my fingers are giving up. I have tons more to say, but will have to do it later. I'm gonna go wash my dog and call it a day! Thanks for reading!
Really pleased for you billy that you have started this. Will be good for all to get an insight from your perspective. And we also get to see your sense of humour..because you can be funny! x
ReplyDeleteChris (your english brother from another mother)
I really wish you could be in NYC when I'm there for the walk next month. NEXT MONTH I'M GOING TO NYC!!! AND I GET TO MEET FIONA! @#$$$!!!!
DeleteOk. I had a moment. ;-) Lord... we'd tear up NYC.
Great start Billy. Nothing has ever been able to stop you. Love you! -AJ
ReplyDeleteI am glad that you started this. I was thinking about you and your post on Facebook about the lawyer and stuff. I kept thinking of your name. WILL
ReplyDelete